Charly Stone

Charly Stone stands at the forefront of medical philanthropy and high-net-worth networking, leading transformational efforts in rare disease research. As the CEO and Board Director of Cure EB Foundation, she has committed herself to accelerating the search for a cure for Epidermolysis Bullosa (EB), a debilitating genetic skin disorder that affects thousands worldwide. With a keen focus on cutting-edge biotech and gene-editing advancements, Charly is driving scientific breakthroughs that hold the potential to revolutionize medicine and offer hope to those battling EB.

Her leadership is distinguished by a rare blend of strategic vision and an unwavering commitment to progress. Recognizing that the fight against rare diseases extends beyond the laboratory, Charly has played a pivotal role in uniting world-class researchers, securing critical funding, and fostering collaborations that push the boundaries of medical research. Under her stewardship, Cure EB is not only advancing groundbreaking treatments but also reshaping global perspectives on rare disease funding and drug development.

Venture philanthropy is at the core of Charly’s approach to driving meaningful change in medical research. By applying investment principles to philanthropy, she ensures that funding is strategically deployed to accelerate promising treatments and bring innovative therapies closer to clinical application. This model of high-impact giving allows Cure EB to take calculated risks, support pioneering research, and bridge critical funding gaps that traditional grants and government support often leave unaddressed. Charly’s ability to align philanthropic capital with biotech innovation has positioned Cure EB as a leader in leveraging resources for maximum medical and social impact.

Charly’s impact extends far beyond her work at Cure EB. A firm believer in the power of collaboration, she leverages her extensive network and expertise to forge high-impact partnerships that drive innovation and yield tangible results. Her ability to bridge the gap between scientific discovery and real-world application has positioned her as a trailblazer in the field, influencing how medical philanthropy and biotechnology intersect.

With a resolute vision for the future, Charly remains dedicated to ensuring that EB is no longer a life-limiting condition. Her leadership exemplifies the profound influence one individual can have in transforming lives, proving that true success is not measured by accolades alone, but by the lasting impact we leave on the world. As she continues to champion advancements in rare disease research, Charly Stone stands as a beacon of hope, inspiring a new era of innovation and change in the medical landscape.

To learn more, head to cureeb.org.au. To discuss opportunities and learn more about getting involved, reach out to Charly Stone.